Looking For Alice SIGNED COPY
Text by:David Chandler
However despite the normality, the underlying fact is that society does not acknowledge Alice as such, and her very existence was given little or no value. She entered a world where routine genetic screening at twelve weeks gestation is thrust towards birth prevention rather than birth preparation. Indeed, prior to the introduction of screening, children such as Alice would have been severely marginalised and ultimately institutionalised and given little or limited medical care.
Their journey as mother and daughter was not an instantly smooth and happy one either: “I was deeply shocked when Alice was born as an 'imperfect' baby. I was fraught with anxiety that rippled through to every aspect of my relationship with her. My anxieties penetrated my dreams. On reflection I saw that Alice was feeling my rejection of her and that caused me further pain. I saw that the responsibility lay with me; I had to dig deep into my own prejudices and shine a light on them. The result was that as my fear dissolved I fell in love with my daughter. We all did.”